Did they have any resources available to help you understand
他們有沒有提供什么資源幫助你理解
like, did you even know what Phase One trial was?
例如理解第一階段臨床試驗是什么嗎?
Had you heard about Phase One or Two?
你聽過第一階段或第二階段嗎?
Did you use the Internet?
你上網查過嗎?
Did you talk to your doctors
你問過你的醫生
what resources are most helpful to you?
哪些資源對你而言最有幫助嗎?
Right, I should actually mention that
好的 我剛才應該提到這點
I didn't really know what stem cells were
我并不知道干細胞是什么
I think I heard it maybe like just the term itself once or twice
我聽過一兩次這個名詞
just about the fact that it's controversial
知道這是個有爭議的話題
and no, I didn't really know what they were
我并不知道是什么
especially embryonic stem cells
特別是什么是胚胎干細胞
so I did ask a lot of questions
所以我確實問了很多問題
I met with Dr. McKenna several several times
我和麥克凱納醫生見了很多次面
He had to really break it down for me
他把相關知識進行了分解
and explained it to me in very simple terms
然后用簡單的語言講解給我聽
that I could understand
便于我的理解
because I mean this wasn't something
因為在日常生活中
that I dealt with in my normal life
我并沒有接觸過這些知識
and I had to learn all this new medical jargon
所以我必須學習這些
that I never heard of before
從未聽過的專業術語
So asking questions
所以我提出問題之后
and having it explained in the most elementary way
他們在以最簡單的方法講解給我聽
Possible, that was very very helpful
這是很有幫助的
It helped me understand
幫我理解
what was it really that was getting myself into
我即將參與的是什么項目
but also one of the things that really was reassuring to me
最后使我心安的是
sort of the seal the deal for me
也就是最后讓我下定決心的是
was being able to speak to the neurosurgeon
我和我的神經外科醫生談了一次
who was going to perform the surgery
他是我的手術醫生
Dr. Garisanberg
蓋里桑伯格醫生
just because going through the whole process
因為簽署知情同意書的過程
of signing the consent form is stressful enough
足以讓我感到忐忑不已
So knowing that you are in good hands
所以要確保給我手術的人值得信賴
and the person who's going to perform the surgery knew
他非常清楚
what they are doing
手術的來龍去脈非常重要
That's one thing not to stress over
不要對手術本身感到緊張
since everything else is incredibly stressful
因為其他方面的工作帶來的壓力大得難以承受
but I had a great team behind me
但我的背后有一個一流的醫療團隊
I went into it fully informed
他們告知了我所有的信息
I did my own research
我自己也做了研究
I had access to the computer and the Internet
我可以使用電腦和網絡
I definitely did as much research as I possibly could
我盡量的對這個問題做了很多的研究
even though a lot of what I've found
盡管很多我找到的內容
I didn't necessarily understand reading it myself
單憑我的能力是很難讀懂的
But I tried to ask as many questions as I could
但我盡力多提出問題
so that I would be able to understand
這樣我就能更好的理解
what was it that I was consenting to
我簽署的知情同意對象是什么